Resources for Research

Data collection resources used for our studies are outlined below. - National Institute of Neurological Disorders and Stroke (NINDS) - International Spinal Cord Society (ISCoS)



Quality of Life Assessments

  • Ability to Participate in Social Roles/Activities
  • Anxiety
  • Cognitive Function
  • Depression
  • Emotional/Behavioral Dyscontrol
  • Fatigue
  • Positive Affect and Well-Being
  • Post Traumatic Stress Disorder Checklist
  • Post Traumatic Growth Inventory
  • Quality of Life Basic Data Set (1.0)
  • Satisfaction with Social Roles/Activities
  • Stigma


Resources for SCI Patients

  • The Christopher and Dana Reeve Foundation: charitable organization dedicated to finding treatments and cures for paralysis caused by spinal cord injury and other neurological disorders. This website contains both information on current research efforts and also resources for people living with SCI.
  • Unite 2 Fight Paralysis: organization dedicated to advocacy, education, and support for research.
  • registry of clinical trials around the world. It is run by the United States National Library of Medicine (NLM) at the National Institutes of Health (NIH). 


Zuckerberg San Francisco General Hospital (ZSFG) Spinal Cord Injury (SCI) Clinical Guidelines Summary

SCI Goals of Care

  • Level of Spinal Cord Injury is confirmed and communicated to the entire healthcare team as early as possible.
  • Definitive surgical intervention is accomplished and patient is started on the SCI treatment protocol as early as possible.
  • Harm events are prevented.
  • Environment of safety is promoted. 
  • Patient and family receive education regarding injury and plan of care
  • Timely discharge to appropriate rehabilitation services is facilitated.
  • Readmission is prevented.